For the past 41 years, the Lupus and Allied Diseases Association, Inc., has been providing education, support, and outreach services for people impacted by lupus and allied diseases while wielding the patient voice as a catalyst to advance awareness, advocacy and research initiatives.
For the Fiscal Year ending on September 30, 2018 our organization's administrative costs were less than 1.0% leaving more than 99.0% of every dollar raised going directly to our Program Services!
It is our hope that if you have lupus and/or an allied disease or love someone with lupus that you will use this website and our programs as tools to become empowered to take control and learn to manage the disease to live life to the fullest. We know firsthand that lupus and allied diseases do not just affect an individual, but also impact family, friends and others close to you.
Know that we are here for you and your loved ones as we all continue on our lupus journeys.
Record Breaking Golf Classic
The 19th Annual Lupus Charity Classic was another record breaking event raising $110,000 on Thursday, August 22, 2019 at the Shenendoah Golf Course at Turning Stone Resort in Verona, NY. Thank you to all of the golfers, generous sponsors, dedicated volunteers and supporters who made the event a great success. Click here to learn more
NYS Advocacy Victories
We are thrilled to share that both bills S02849 / A02969 limiting non-medical switching practices and S04078 / A03009 synchronizing drugs and standardizing dispensing fees were passed by the NY State Assembly and Senate in June after years of advocacy efforts by LADA and other patient and professional organizations. learn more
LADA Presents at Lupus 2019
Lupus and Allied Diseases Association President & CEO Kathleen Arntsen presented The Power of Advocacy to Improve Lives during the Patient Voice session at the 13th International Lupus Congress on April 7, 2019 in San Francisco urging attendees to become empowered through advocacy. Click here to learn more
Annual Research Donations
The Lupus and Allied Diseases Association donated $100,000 to the Lupus Research Alliance for lupus and autoimmune research at the August 22nd Golf Classic in addition to the $100,000 donated to the Lupus Foundation of America in March at their Advocacy Summit, making it another $200,000 in one year to research. Click here to learn more
LADA Attends NICA Annual Conference
LADA representatives joined over 500 infusion community stakeholders attending NICA's inaugural conference on June 21-22, 2019 in downtown Austin, TX to network and discuss access and treatment challenges for the industry. Click here to learn more
LADA Delivers on Education Road Show
We have successfully held all 3 of our Education Symposiums Enhancing Lives by Empowering the Lupus Community in Honolulu, San Francisco, and Denver. For more information about this empowering program, speakers and photos click here to learn more