Sat, Apr 30 | LIU Brooklyn

Enhancing Lives by Empowering the Lupus Community Brooklyn Education Symposium

If you're tired of the current state of Lupus treatments or want to learn how to become engaged in your own medical care or you're a care partner for a loved one with Lupus or another chronic disease then join us to learn how you can become involved and make a difference!
Enhancing Lives by Empowering the Lupus Community Brooklyn Education Symposium

Time & Location

Apr 30, 2022, 11:00 AM – 4:00 PM EDT
LIU Brooklyn , Health Sciences Building, Room 119, At Flatbush and DeKalb Avenues, 1 University Plaza, Brooklyn, NY 11201, USA

About The Event

An educational symposium featuring topics on Clinical Research Trials and Participation, Patient Empowerment, Treatment Access Challenges, Care Partnering and Tools for Survival when Dealing with Chronic Disease. A list of regional lupus clinical trial opportunities, patient empowerment and advocacy resource materials and a list of current healthcare access issues will be available for distribution.  Lunch is included and the event and luncheon are free, but you must register to attend. 

 

Session Topics Include:

Lupus Patient Research Viewpoints 

Research, regulatory and public health expert and HPM Associate Sarah Wicks moderates a dynamic patient panel comprised of patient advocate Dan Baruah, and LupusChat co-hosts and patient advocates Christele Felix, Carly Harrison and Tiffany Peterson sharing their unique lupus stories and patient viewpoints on research. This informative session also covers research challenges and the importance of clinical research participation in the development of new lupus treatments.

The Power of Advocacy:  Promoting Participation to Improve Care and Advance Research 

Organization leader and national patient advocate Kathleen A. Arntsen gives a vibrant presentation covering her journey with lupus and road to empowerment that emphasizes the importance of effective advocacy engagement to improve access to care and quality of life. She also addresses current advocacy efforts and re-emphasizes the significance of research participation. 

Care Partner Perspectives: We Love Someone with Lupus

Educator, administrator and advocate David Arntsen, and LupusChat co-host and lupus advocate Elizabeth SantaCruz give an inspirational co-presentation for loved ones, care partners, friends, healthcare students, and individuals living with a chronic disease; drawing from their personal experiences in coping with their family members’ unpredictable lupus journeys and medical conditions. 

Share This Event