Enhancing Lives by Empowering the Lupus Community Boston Education Symposium
Time & Location
About The Event
An Educational Symposium featuring topics on Clinical Research Trials and Participation, Patient Empowerment, Treatment Access Challenges, Care Partnering and Tools for Survival when Dealing with Chronic Disease. A list of regional lupus clinical trial opportunities, patient empowerment and advocacy resource materials, and current healthcare access issues will be available for distribution. Lunch is included and the event and luncheon are free, but you must register to attend.
Session Topics Include:
An Overview of Clinical Research Trials
Tufts CSDD Deputy Director and Professor, research expert and CISCRP Founder Ken Getz presents on the importance of clinical research trials including definition, purpose, and their significance in developing new treatments for individuals with lupus. He will also describe the state of lupus treatments including: recent history, current medications and drugs in the pipeline.
The Power of Advocacy: Promoting Participation to Improve Care and Advance Research
National organization leader and patient advocate Kathleen A. Arntsen gives a dynamic and informative presentation on how to become empowered and effective as an advocate to improve access to care and quality of life that also addresses the importance of clinical trial participation and current advocacy efforts. She will share her personal journey with lupus, road to empowerment and her own clinical trials experience with the audience.
Care Partner Perspectives: We Love Someone with Lupus
Educator, administrator and advocate David Arntsen, and Looms for Lupus President and patient advocate Estela Mata provide an inspirational co-presentation for loved ones, care partners, friends, healthcare students, and individuals living with a chronic disease, drawing from their personal experiences in coping with their family members’ unpredictable lupus journeys and medical conditions.