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Hope is on the Horizon

Clinical Trial Participation

 

If you have been diagnosed with Lupus or another medical condition and you are frustrated with the lack of safe and effective treatment choices currently available, then you may want to consider participating in a clinical research trial. Please keep in mind that making the choice to participate in a clinical study is a very personal decision that should be based on discussions between you, your loved ones, and your treating healthcare providers that are the most familiar with your medical history.  We cannot emphasize this point strongly enough.  

 

Clinical Trial Search Tool 

 

We are very excited to partner with Antidote to launch a clinical research trial search tool. To begin searching for trials for Lupus or another disease, click on the white Start button and respond to the prompts. You will then be asked to answer several questions to help narrow down and identify possible clinical trials for you.  

Clinical Trial Resources

 

Clinical Trials - a service of the US NIH
ClinicalTrials.gov is a database of privately and publicly funded clinical studies conducted around the world.

 

The Center for Information & Study on Clinical Research Participation (CISCRP)
CISCRP (Center for Information and Study on Clinical Research Participation) is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process.
Learn more at www.ciscrp.org

 

Coalition for Clinical Trials Awareness (CCTA)
The mission of the Coalition for Clinical Trials Awareness is to advocate for the creation of a federally sponsored public awareness campaign to increase the public’s understanding of the benefits of clinical trials. 
Learn more at www.cctawareness.org

 

United States National Library of Medicine, National Institutes of Health 
The National Library of Medicine (NLM), on the campus of the National Institutes of Health in Bethesda, Maryland, has been a center of information innovation since its founding in 1836. The world’s largest biomedical library, NLM maintains and makes available a vast print collection and produces electronic information resources on a wide range of topics that are searched billions of times each year by millions of people around the globe. It also supports and conducts research, development, and training in biomedical informatics and health information technology. In addition, the Library coordinates a 6,500-member Network of the NLM that promotes and provides access to health information in communities across the United States. 
Learn more at www.nlm.nih.gov

 

Office of Research on Women's Health, Office of the NIH Director, National Institutes of Health/DHHS
ORWH is the first Public Health Service office dedicated specifically to promote women's health research within and beyond the NIH scientific community. Women's health research is an essential part of the NIH research agenda. The field includes the study of health throughout the lifespan and across the spectrum of scientific investigations. Learn more at www.orwh.od.nih.gov

 

 

Additional Resources

 

BMS Study Connect
BMS Study Connect is a global platform dedicated to increasing clinical trial awareness, participation, and engagement among patients, caregivers, and healthcare professionals. Visitors can learn about clinical trials and find a trial that might be a good fit for them, their loved ones, or their patients. Individuals are then connected with our study sites through patient screeners and online referrals.
Learn more at
www.BMSStudyConnect.com
 


Learn About Clinical Trial Opportunities 

To learn about lupus clinical research trial opportunities go to www.clinicaltrials.gov

  1. Type lupus in the search box and click on the search button. 

  2. Then click on the On Map tab at the top. 

  3. Click on the Geographic Area, Country or State you are interested in and the studies for that area will be listed.

  4. Click on a specific study for details about the trial's purpose, study eligibility, inclusion and exclusion criteria, locations, and contact information. 



The Lupus and Allied Diseases Association, Inc., would like to thank Kathleen Arntsen for her efforts in developing the Hope is on the Horizon program and resource material. 
 

Lupus and Allied Diseases Association, Inc.

P.O. Box 170

Verona, NY  13478

 

Phone 315-829-4272
Fax 315-829-4272

Toll free 1-866-2-LUPUS-4

e-mail -  Info@LADAinc.org

© 2018 ALL RIGHTS RESERVED, LUPUS AND ALLIED DISEASES ASSOCIATION, INC.