Amplifying the Patient Voice
throughout the healthcare, regulatory and public policy arenas and across the research continuum!
For the past 46 years, the Lupus and Allied Diseases Association, Inc., has been providing education, support, and outreach services for people impacted by lupus and allied diseases while wielding the patient voice as a catalyst to advance awareness, advocacy and research initiatives.
For the Fiscal Year ending on September 30, 2023 our organization's administrative costs were less than 1.0% leaving more than 99.0% of every dollar raised going directly to our Program Services!
It is our hope that if you have lupus and/or an allied disease or love someone with lupus that you will use this website and our programs as tools to become empowered to take control and learn to manage the disease to live life to the fullest. We know firsthand that lupus and allied diseases do not just affect an individual, but also impact family, friends and others close to you.
Know that we are here for you and your loved ones as we all continue on our lupus journeys.
What's New
LADA Celebrates Lupus Awareness Month
LADA will be promoting May as Lupus Awareness Month with its 31 Days of Lupus Facts, 16th Annual New York State Capitol Legislative Awareness Event and celebrating World Lupus Day (WLD) on May 10th. We are also excited to co-sponsor our First Annual Lupus Walk with the Masonic Medical Research Institute (MMRI) on May 18th at their Campus in Utica, NY. Click here to learn more
LADA partners with NKF, LFA and LRA on LN PFDD Meeting
The National Kidney Foundation (NKF) is hosting a Lupus Nephritis (LN) Patient Focused Drug Development (PFDD) Meeting on October 11, 2024 in Hyattsville, MD. The meeting will be held both in person and virtually. If you have lupus nephritis we urge you to click here to take the patient survey to share your insights.
Click here to learn more or register.
LADA Featured in RRF's Foundation Voice
LADA was featured in the Rheumatology Research Foundation's Foundation Voice spring edition in an article called Philanthropy in Action: Lupus and Allied Diseases Association, Inc. The article gives an overview of the Marc R. Chevrier, MD, PhD, FACR Lupus Research Memorial Fund that we established to honor the life and legacy of Dr. Marc Chevrier. Click here for the publication and go to page 11.
LADA's 24th Annual Lupus Charity Golf Classic Registration is Now Open
Registration is now open for the 24th Annual Lupus Charity Golf Classic to be held at Shenendoah Golf Course at Turning Stone Resort and Casino in Verona, NY on Thursday, August 15, 2024. We are accepting the first 32 teams paid in full. All proceeds benefit LADA's program services. Sponsorships also available.
Click here to learn more
LADA Attends ACR Convergence 23 Conference
LADA hosted the Lupus Community Booth at the American College of Rheumatology's Convergence 23 Conference held November 11-15, 2023 at the San Diego Convention Center in San Diego, CA. LADA sponsored 14 people with lupus and care partners to attend as well as 2 patient advocates to participate in the Patient Perspectives Program. Click here to learn more
A Record Year in Lupus Research Support
LADA is thrilled to share that we continued to expand our lupus research program investments in 2023 even after making 2022 a record year of giving to lupus research. We are honored to have supported an incredible $531,400.00 in lupus research grants, bringing our overall total to $2,352,838.73 since 1990. Click here to learn more
A Beautiful Day to Break Records at the Lupus Charity Golf Classic
LADA's 23rd Annual Lupus Charity Classic was held on Thursday, August 17, 2023 at the stunning Shenendoah Clubhouse and Golf Club at Turning Stone Resort and Casino in Verona, NY. The event was a great success with 34 teams participating and raising over $184,000 in gross proceeds to fund our advocacy, awareness, education and research programs. Click here to learn more
Lupus Research Honor
LADA's Board of Directors and Supporters celebrated May as Lupus Awareness Month at the Masonic Medical Research Institute (MMRI) on May 19, 2023 while the MMRI launched their new Center of Excellence in Immunology & Rheumatology Research Lab named in honor of LADA. They were joined by federal, state and local policymakers to promote lupus awareness and research. Click here to learn more.
Lupus Awareness Month 2023
LADA traveled to Albany along with the other Lupus Agencies of New York state groups on May 3, 2023 to be recognized in the Assembly and Senate Chambers of the state capitol. We thank Assemblyman Fred Thiele and Senator Joseph Griffo for continuing to sponsor the resolutions recognizing May as Lupus Awareness Month each year. Click here to learn more
World Lupus Day Celebrated with Hats on 4 Lupus
LADA celebrated on May 10th as World Lupus Day (WLD) by promoting our Annual WLD Tea and Hats on 4 Lupus While You Brew Up Your Inner Warrior event. It's not too late to Pour yourself a cup of tea or beverage of your choice, put on a hat and snap a photo and send to us for our gallery. Click here to learn more
Groundbreaking Health Economic Assessments Initiative
LADA is excited to share results of our groundbreaking survey of U.S. based patient advocacy organizations to gauge their knowledge and experience concerning participation in Health Economic Assessments (HEAs) and the types of resources or support they might need to consider participating in future HEAs. Click here to learn more